Pain & Palliative Care

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Children  with complex chronic conditions, who often survive near-death crises followed by the need for rehabilitative and life-prolonging treatments, are best served by a system that is flexible and responsive to changing needs.  We as a person or a group can work together in creating a system that provide palliative care for those children who live with a significant possibility of death before adulthood.

Conditions Appropriate for Palliative Care

CONDITIONS FOR WHICH CURATIVE TREATMENT IS POSSIBLE  BUT  MAY  NOT  SUCCEED

Advanced or progressive cancer or cancer with a poor prognosis

Complex and severe congenital or acquired heart disease

PROGRESSIVE CONDITIONS FOR WHICH THERE IS NO 

CURATIVE OPTION AND IN WHICH TREATMENT IS ALMOST EXCLUSIVELY  PALLIATIVE  AFTER DIAGNOSIS

  • Progressive metabolic disorders (e.g. mucopolysaccharidosis, Tay Sachs)
  • Batten disease
  • Severe forms of osteogenesis imperfecta

CONDITIONS INVOLVING SEVERE, NON PROGRESSIVE DISABILITY, CAUSING EXTREME VULNERABILITY TO HEALTH COMPLICATIONS

  • Severe cerebral palsy with recurrent infection or difficult-to-control symptoms
  • Severe neurologic sequelae of infectious disease
  • Hypoxic or anoxic brain injury
  • Brain malformations such as holoprosencephaly or lissencephaly

CONDITIONS FOR WHICH THERE IS INTENSIVE LONG-TERM TREATMENT AIMED AT PROLONGING LIFE AND MAINTAINING QUALITY OF LIFE BUT PREMATURE DEATH IS STILL POSSIBLE

  • Human immunodeficiency virus infection
  • Cystic fibrosis
  • Severe immunodeficiency
  • High-risk solid-organ transplant candidates and/or recipients such as lung or multi-visceral
  • Chronic or severe respiratory failure
  • Muscular dystrophy
  • Primary pulmonary hypertension

Watch Video To Learn More

Dr. Rakesh Sharma Prof Pediatrics IGMC Shimla, is a pioneer and visionary in the field of in Pain and palliative care education  in India.